Normal Day

“Normal day, let me be aware of the treasure you are. Let me learn from you, love you, bless you before you depart. Let me not pass you by in quest of some rare and perfect tomorrow. Let me hold you while I may, for it may not always be so. One day I shall dig my nails into the earth, or bury my face in the pillow, or stretch myself taut, or raise my hands to the sky and want, more than all the world, your return.” 
― Mary Jean Irion 


Nearly 3 months after my last post, I sit here in my comfy chair, warmed by the sun, thinking back on all that we've been through in this short period of time.

Grief has made it's way into my life and seeped into every crack of my heart.  Tears flow regularly,  lubricating the emotions that I feel.  I don't think that the grief I'm experiencing is a bad thing.  "There is a time for everything..."  It's just that I'm usually not someone who spends a lot of time feeling ONE THING, and lately, all I feel is this overwhelming sadness over this interruption into our lives; this diagnosis that changes how care-free my daughter can live.   Grief has watered seeds of fear that haven't sprouted in years, causing anxiety that I long ago put out of my life.    It's also caused me to loosen the possessive "mom-grip" that I tend to have on my kids, knocking out all insane notions that I am in any way in control of anything.   Daily, I am challenged to let go of my fears and to trust God in ways that I should have been all along.  I read scripture that reminds me that He loves us and is watching over my kids. I find myself time and time again throughout the day bringing my concerns to the Lord, seeking His strength and His peace.

It's not all bad to have the depths of your heart woken up a bit.  It's a great thing to seek comfort in God's word and to trust more fully in His presence and His promises. Desperation makes me cry out even more to my Heavenly Father and His perfect peace never fails when I choose to bring myself honestly and fully to Him.  It's been a blessing to come together with Patrick in our collective thoughts and feelings about our girl, Maddie.  To have him as my partner in the good AND hard of life is one of the best ways that God has ever shown His love to me.   I have found great peace in music and in rest.
These are the good things that come from leaning into the feelings that have accompanied this unexpected life-change.  Admittedly, I  long to move through the stages of grief more quickly and to set up camp in Acceptance.  I feel like here is where I will be able to relax and hang out with less sadness. However, I know there is value to each step of this journey,  so for now, I'm willing to just take the next right step.

Maddie is a strong warrior who is walking down this path set out before her with such strength and such poise.  She is brave and capable and most of all, full of laughter and life.  I admire her capacity to take in this unexpected and challenging hardship and still live life with an abundance of joy.

Normal days are becoming more normal again.  So often, I have taken them for granted.  But now, I'm just grateful for them.  Over the last few months we've had days of soccer, Sunday afternoon fishing trips, a fantastic Spring Break trip to Moab, and Patrick and I even got away for a quick trip to SF.  Life is not perfect or easy, but it is most certainly beautiful and one to be treasured.  

Psalm 71

Winter Words

Maddie and I went from the doctor's office to the lab on a regular Tuesday.  We were impatient, finding fault with the PA's order that Maddie get blood drawn.  All we could think about was how annoying the wait at the lab was going to be, how dinner was going to be delayed, and that Maddie's friend was going to have to wait on us.  As I sat on the hard, plastic chair listening to name after name be called, the thought of  "What if?" came to my mind.  "What if" something is wrong? "What if" she is sick.  "What if" they never call our name and we are stuck at the lab for forever... "What if" it's serious?  and more...

Our name did finally get called, and Maddie rolled up her sleeve and rolled her eyes, thinking how unnecessary this blood draw was.  She felt fine.  Well, not fine, but fine enough.  So fine that her plans for the evening were to spend time with her bestie!  Sure, Maddie had experienced some strange health issues over the past 6 months, but they were things that we treated and endured and "fixed".

As inconvenient as going to the lab on a cold December afternoon was, somehow I knew it was necessary.  My instinct had taken her to the doctor and now my gut was telling me that something was really wrong.  Two hours later, I got a call with the lab results and a diagnosis of Type 1 diabetes.  We were given instructions to make our way to the ER for immediate treatment.   As I stood in the Target parking lot, accepting a phone call that would alter our lives, I was filled with doubt.  Not believing for a second that we needed to rush to the ER, I questioned the PA incessantly.   She politely overlooked my doubts and told me that she had confirmed the plans with the doctor, and that I was welcome to call him - which I did.  His caller ID announced me;  "Heather", our pediatrician and friend answered.  "Is it true?" I asked.  "Is it diabetes?".  Pause... "Yes."  "And we need to go tonight"?  "Yes".  "Will you call ahead for us".  "Yes.  I'm so sorry.  This is life changing and you can handle it."
 

I'll never forget going downstairs to Maddie's room to give her the news of the diagnosis and the urgency with which we needed to get her help.  Oblivious to what had transpired, her music was blaring and her pretty voice was singing.  I knocked on her door, and quietly told her what was going on.  I'll also never forget how much she trusted me and how quickly she responded even though she was filled with her own doubts.  You would have thought we had rehearsed tossing our belongings into overnight bags, as if we had planned this from the beginning of the day.  The other kids at home had questions that we didn't have answers to, there were plans that had to be made so that things at home were taken care of.   And like clockwork, God's grace kicked in.  It's really the only explanation for how smoothly the chaos was managed.

Arriving at the hospital provided some peace in the middle of the turmoil.  We were uneducated about T1D, and had no idea how much we would learn in a very short period of time.  What we were assured of by the nurses and doctors that cared for Maddie is that she would start feeling much better, soon.   Even though we were reeling from the events of the past hour, we took great comfort in knowing that we had found out what was causing the recent and strange health issues.

We spent the night at the hospital while Maddie's blood sugar was monitored.  Looking back now, I was in shock yet played the part of "capable Mom" well.  An Oscar worthy performance perhaps. Being strong for my daughter and husband, assuring everyone that we were going to be okay, never for a second believing my own voice.  But I felt that God was near.  I couldn't see Him or touch Him, but I know He stayed with me in the hospital room that night. I don't think He was fooled a bit by my acting, but He knows me best and knew what I needed.  He's like that, showing up and handling things when we cannot. 

Although the diagnosis of T1D is not the end of the world, it has most definitely rocked ours.  However, we have amazing doctors and nurses that are educating and supporting us.  We have had 3 weeks practice at blood sugar draws and insulin injections, and Maddie feels like a super-hero (her words :)) because she has mastered giving herself shots.  We have emergency stashes of food and candy and medicine.  A sharps container hides behind the coffee pot on the kitchen counter.  A drawer has been emptied of kitchen utensils in order to make room for diabetes supplies.  Logs are kept of carbs and units of insulin.  Food is weighed and calculated.

Maddie is a rock-star.  She is capable and strong, and although she gets scared and tired, she doesn't spend time feeling sorry for herself.   

 Right now, I am pretending to be okay;  faking it for a bit; continuing to play the part I began learning that first night.  "We'll be okay".  "We can manage this".  "We'll be fine".  Pasting a smile on my face and carrying on, because it's what I do, what I'm known for.  It's what folks want to hear from me.  They want to know that I'll take care of things, and that I have the faith to handle this.  It's what friends believe about me; it's what I usually believe about myself.  But really, I'm not okay.  The truth is that I am scared about my daughter's health.  I'm anxious about her future.  I question our ability to manage this disease in a life that is so busy and full.  I worry about not being strong enough for all of us, because I know that deep down I'm weak and selfish and ill-equipped. But I also know that God is here and that He loves us.  My faith in Him isn't just for the great times, but it's for these difficult times.  I believe that that these dark days that I'm living in are not dark to Him.  I know that when the grief overwhelms me and my inadequacies appear greater than my abilities He is here, holding me and watching out for Maddie. I know it, I just don't feel it all the time. My comfort is found in scripture, because it tells me the truth and that is what I need so desperately.  I think back to the afternoon that I sat in the waiting room at the lab, before we knew what we know now, my "What if" questions coming to mind.  Even in my sadness, I am comforted by my own conclusion that the God that walked with us into the lab is the same God that walked with us out of the lab.   Maddie's diagnosis didn't cause Him to change His promises or care of us.  He hasn't altered His presence or His sovereignty.  He is so full of grace and love and compassion for Maddie, for me, for our family.  He has showed us His goodness in so many ways and even in this hard circumstance, we are blessed. 

 Psalm 139:11-12 

"If I say 'Surely the darkness will overwhelm me, and the light around me 

will be night'; Even the darkness is not dark to You, and the night is as bright as the day.  

Darkness and light are alike to You." 

Psalm 23:1-4

"The Lord is my Shepherd. I shall not want.

You have bedded me down in lush meadows, you find me quiet pools to drink from.

True to your word, you let me catch my breath, and send me in the right direction.  

Even when the way goes through Death Valley,

I'm not afraid when you walk at my side.

Your trusty Shepherd's crook makes me feel secure." 
   

weekend seats

The wet grass stuck to my boots as I trudged across the wet soccer field.  45 minutes early to the game, per the coach's instruction, I set up my red chair and took my place on the sidelines.  It was a gorgeous, autumn Saturday for soccer.   Hot pink socks, new to the team for the month of October, adorned the fast legs of #14, the boy I had come to watch.  Our preparation for the game had started  earlier in the week as we had talked about the competition.  "You're going to play great!" was the mantra that I had repeated over and over.  At home, we prayed for the game and "oiled" him  up for the game (Young Living Oils); in the car Michael played his favorite playlist, songs to inspire him.  He was ready.  I sat in my soccer spot, delighting in watching my son do what he loves.  Not only is he skilled at the technique of soccer he is also a strong team-player, an encourager, and a coach-able player.    I love the camaraderie that the collective parents share as we cheer on our boys.  Saturday soccer has become one of my favorite activities.   The game ended in a tie, both teams fighting hard. As I packed up my chair and headed back across the  field, my heart welled up with gratitude for these opportunities  that Michael has to play well, to be coached by an incredible coach, and to get to have fun with his friends.

My minivan is literally my favorite thing,  and the seat I sit in is one of my favorite seats.  Really, I view it as a place of honor that I was chosen for, a location from where I fulfill this calling on my life of motherhood.  From this special seat,  I navigate around our lovely town  carpooling numerous kiddos, getting groceries, taking friends places. etc.  Saturday, I got to take Meredith to a birthday party for one of her good friends.  My sweet girl is just the best kind of friend.  If I was 11, I would want Meredith on my team of friends.  She is loyal and kind, she looks to meet the needs of others, and she is constantly thinking about her friends.  I love listening to her process the relationships that she has.  Nearly knee deep in middle school,  she has keen observations about what her friends say, what they wear, who they are, how they feel.  She has extreme empathy and is less worried about herself fitting in and much more aware of how to help her friends fit in.  I love how much she loves her friends. God created Meredith to be a good friend, and it is a blessing to watch the joy in her spirit when she gets to be with her special friends. . 

Later on  Saturday, I drove to south Denver to watch Maddie and her band participate in a competition.  The fall sun beat down on us as we watched from the metal bleachers.  Band after band after band took the field and performed their current show.  Parents and directors wore t shirts in their school's colors, words written across chests and backs proclaiming school pride.  There was a crispness in the air as we anticipated the FRHS show.  They are the best at what they do and they have the trophies to prove it.  Hours of rehearsals paying off on this one night.  I glanced to my left during a rival school's performance and noticed that our band was coming onto the field.  Pride flooded my heart and goosebumps covered my body as I watched them line up.  I am privy to the knowledge of why they have their backs to the field - it's to keep them focused, and it does.   The pomp and circumstance surrounding their presentation thrills me as I wait for them to make their final march to the field.  I've heard the music before, yet I just can't wait for that first note from the xylophones.  Maddie starts her dance between the 40 and 50 yard line.  I see her from my stadium seat, my heart sending out prayers for strength to catch her flag every time, which she does.  Occasionally I lose sight of her as she moves about the field but throughout the performance my mama energy is focused on her.  My beautiful red head  has persevered through hours of stress and practice and has emerged as a skilled member of this excellent marching band.  My emotions are raw, and I can't hold back the tears of gratitude that flow in honor of all that Maddie has achieved.

It's now Sunday morning,  the day that we go to church.  .  "Who is coming to church this morning?" the text says.  "Everyone" I write back.  Marky has been rehearsing since 7:30, pumpkin spice latte in hand to assist with the early hour.  I arrive at church and we make eye contact across the sanctuary.   She moves towards me and I give her a hug that somehow I know that she needs.  "You're going to do great", I say.  Her shy smile and shallow breathing show me that she is nervous.  We part ways and I take my seat on the cushioned pew.  I have sat in this seat countless times.   I have worshiped in the place countless hours.  The comfort and peace that our church gives our family is a blessing.  When Marky was 8, she  told me that her 2 favorite places in  the world were Grandma's house and our church.  I feel the same way.  It's a safe place to be, a familiar place to go.  I watched Marky take her seat at the piano on stage, a piano that I have sat at many times myself.  I listened to the notes that she played, oblivious to all other sounds.  This sweet child of God, serving Him with the gifts that He has given to her.  I'm standing now, arms raised, praising my Lord who has  made Marky's life so beautiful.  In this very space, many years prior,  I begged God to help me and my girls.  I cried out to Him to take the pain and shame of divorce, and turn it into something beautiful for my daughters.  Sunday, I felt God tell me "I heard you.  Just look at her.."  God was so faithful to answer those cries for me and my girls, and on Sunday, from the fingers of my daughter, I heard Him whisper "I love you."

Many different seats this weekend to enjoy this life I've been given.  Kids to celebrate and cherish.  Evey moment giving an opportunity to say "That's my kid!  Aren't they amazing?"